FROM UNAWARE TO AWARE: MY JOURNEY WITH AUTISM

Author: Mr Sumit Sehgal Author | Poet | Mentor to Young Minds Founder, Young Dragons’ Literary Hub | 4th April, 2026

On World Autism Awareness Day, I find myself not just thinking about autism, but thinking about how I changed.

Because the truth is, autism didn’t change.
I did.

Phase 1: Unaware (2010)

My first introduction to autism came through the film My Name Is Khan.

I remember watching Shah Rukh Khan play Rizwan Khan; an autistic individual navigating a world that often misunderstood him.

But here’s the honest part:
I watched it… without really seeing it.

I didn’t understand autism.
I didn’t question it.
I didn’t reflect deeply.

It was just another story.

Yes, I felt emotions. Yes, I admired the performance.
But awareness? Sensitivity? Understanding?

Not really.

Phase 2: Sensitized (Years Later)

Almost a decade and a half later, life had other plans.

As I stepped deeper into mentoring young minds, I was introduced to The Neuroaid Research Foundation (NRF).

And that’s where everything began to shift.

I didn’t just hear about autism anymore.
met children on the spectrum.
worked with them, through storytelling sessions, through interaction, through presence.

Then came something even more personal;
writing a book for them, seeing it come to life, and having it launched at the Purple Fest.

And in those moments; conversations, smiles, silences, expressions;
I wasn’t teaching.

I was learning.

Slowly, gently, deeply…
I became sensitized.

Phase 3: Aware (Now)

Recently, I watched Tanvi The Great.

And this time; it was different.

I didn’t just watch the character of Tanvi.
I understood her.

Her silences spoke.
Her determination made sense.
Her world didn’t feel distant anymore.

For the first time, I wasn’t observing from the outside.

I was connecting from within.

The Real Realisation

Here’s what truly struck me:

The children I met…
The individuals on the spectrum…

They didn’t change.

Their world, their way of being, their truth;
it was always there.

It was my lens that was incomplete before.

I moved from:

  • Not noticing
  • To observing
  • To understanding
  • To respecting deeply

What Autism Taught Me

Autism is not something to “fix.”
It is something to understand, accept, and honour.

It taught me:

  • That communication is not always verbal
  • That expression has many forms
  • That patience is not optional; it is essential
  • That brilliance often exists in ways we are not trained to see

And most importantly:

That awareness is not information.
It is transformation.

Today…

Today, I don’t just say I am aware.

I say I am still learning.

Because awareness is not a destination.
It is a continuous journey of unlearning, relearning, and becoming better.

From Me to You

If you are where I once was unaware;
that’s okay.

Start noticing.
Start listening.
Start engaging.

Because the moment you do;
you won’t just understand autism.

You will understand humanity better.

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